Saturday, September 28, 2013

Someone who cares...NOT

"If you are going to have psychiatric problems at least do it around someone who gives a shit."  I witnessed this understandable, if callous reaction to someone who has gone through 5 years of hell. The person reacting that way was somehow related to a Congressman who lived in that neighborhood. She was riding a bicycle towing a little trailer with a child in it also in a bicycle helmet so I couldn't tell who she was. Her bitchiness was obviously directed at my friend since there was no one close enough for her statement to be directed at anyone else. My friend understands her lack of compassion, she has felt that way about HERSELF. In fact, she states quite often that no one can be harder on her than she is herself.

For the past year she had been receiving excellent care from Easter Seals. Her life had stabilized and was told she didn't need individual therapy any longer. She has  not been quite in agreement with that but agreed that the worst appeared to be over. The problem is that she has begun having new symptoms: inability to put more than one sentence together that makes any sense. It has her quite frightened. She has some others alarming symptoms too. Then last week she received a letter from the DHS that SNAP and Medicaid were closing her case. The questions abound: Why close it now? Is there any connection to the date of October 1st which is also the day the Marketplace starts accepting applications?  Whatever the case, she has some serious physical illness as well as the Bi-Polar, PTSD and major depression.  She is now even more frightened that she was a year ago. When she gets frightened her Bi-Polar kicks in. Yesterday she had a barium swallow test and they showed her the x-ray - quite clearly there was fluid of some type above her stomach.  It is NOT supposed to be there. She also has trouble swallowing.  So she is afraid of being ill without health insurance until.
January1st. 

The reason the case was closed on her was, it turned out was because her SSDI was also being closed out. She has to go to a hearing and to apply again. She already had a meeting with her case worker's boss and he talked so fast her head was spinning. She was told to sign a report and never gave her the chance to read it before signing. She suspects that it was a waiver of the full hearing. It just seems wrong.  If the hearing DOES take place she will be at a distinct disadvantage given her problem with her speech AND not knowing  anyone who could be her advocate. 

So she is afraid again. We are both afraid what will happen with her SSDI. Even on SSDI and on Medicaid she will be below the poverty line and unable to get the medical care she needs. Nor will she be able to afford to get her 12 medications which comes to a LOT of money without Medicaid. Her fears are very real. And neither of us knows what will happen.  

Maybe she doesn't give a ** either.

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