Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Thursday, September 13, 2012

Resources for Adults With Asperger's

When will there be resources for ADULTS on the Autism Spectrum?  There is a critical shortage as autistic/Asperger's children grow up to be adults and for those who already are. Who will take this critical need seriously? Where are the researchers, where are those trained to diagnose adults? Where are those trained to help smooth the transition into society? Those who can help train for jobs, for living independently,etc? So far the need far outstrips the supply. See this from PBS: http://www.pbs.org/newshour/bb/health/jan-june11/autism5adults_04-22.html  and this:http://www.jobs4autism.com/adults-struggle-with-lack-of-services/ . The stories are seemingly endless, including my own. There was no diagnosis when I was a child,so I am looking for resources as an adult. I can't even find someone who can diagnose me. especially since I am unemployed, the common issue for adults with Asperger's even though we are intelligent and talented  and extremely honest. The lack of social skills keeps us from living up to our potential as does the continued discrimination and stigma surrounding the condition. If only there were the resources, people on the high end of the Autism spectrum could contribute in a meaningful way to society and the economy. One option is to provide internships to help prepare us for the workplace. The problem is that most internships are designed for college students without special challenges. They are often seen to be cheap labor. What the adults on the high end of the Autism Spectrum need are internships especially designed for their particular challenges, and that would take a lot of work. Who is willing to put that kind of effort into providing assistance to someone with Aspergers? That is the challenge. That and the research required and the trained professionals and the money. 

So we call on the State and Federal Government to provide for these needs. They will pay off in the long run as we enter the workforce and pay taxes. NIH and NIMH could facilitate much of the research required. Please, someone hear our plea! It makes sense. It is the right thing to do.


Friday, August 31, 2012

Face Your Fear








Why is it so hard for me
to be able to be seen
as capable in my own right
and valuable to a team?

Why is it so hard for you
to see here a real person,
not the weirdo you think I am, 
and that I can contribute too?

Why the discrimination?
What is it you're afraid of?
Who is it that's really challenged?
When will you see God's creation?

Stop! And look in the mirror;
ask yourselves all these questions.
What are the answers you're getting?
The circumstance should be clearer.

If you're honest with yourselves
you will have to acknowledge 
a form of stigma and bias
we've always known exists ourselves.

It's time to make a change here.
Please don't wait any longer.
Exclusion causes us great pain
and you need to move past the fear.



Saturday, August 25, 2012

I Won't Run

"Cut your losses",
says someone I know.
"Find someone who
appreciates you."

That's good advice.
There's just one problem:
The thugs remain
to drive me insane.

I will not be
intimidated
into stillness
about illness,

the stigmatized
ignored and abused.
They need to change
how they short change

disabled people
in the campaigns and
the Party too;
let us break through.

They need to learn
a little critique
is not so bad,
no need to get mad.

Strong people grow
from criticism,
not run from it
or throw a fit.

All we want is:
not be shoved around,
be included,
not secluded.














Thursday, August 23, 2012

Faith and Depression

It has always seemed like such a contradiction: how could someone who firmly believes in Jesus as the Christ also be depressed and suicidal? They do not go together in the normal schema of faith.If you believe in the saving grace of Jesus then there ought to be no room for despair, hopelessness, depression and suicidal thoughts, right? Nope. It turns out that the same person who believes the former also suffers with the rest. It may seem like a contradiction but the reality is that they co-exist.

The problem lies with the failure to understand depression as the organic illness it really is. Many Christians see depression as a spiritual failure, somehow the fault  of the depressed person for not having enough faith. The truth is, depression is an organic, definable illness in the same way heart disease is. Not many of us would classify heart attacks as a failure of faith. Neither should we define depression that way. Depression is caused by real imbalances in brain chemicals and complicated by life events.One may or may not question the role of faith in the life events but to call an imbalance of seratonin, dopamine and other chemicals in the brain a lack of faith is a serious failure to even try to understand the true nature of depression.

The Church, as a whole, needs to do a better job educating parishioners about mental illness in general and depression in particular. Though MILLIONS of us suffer from depression every year in this country only 3 in 100 sufferers seek help. That has to change. There should be no more shame in seeking help for depression than in going to the doctor for cancer. Indeed there should be no shame in being depressed at all. It is not  a matter of fault or blame. It JUST IS.

I have a Masters Degree in Theology and my home church was quite proud when I was ordained Deacon in the United Methodist Church. They were less thrilled when I left the ministry but they were still my home church. They managed to get their investment back by using my gifts and graces as much as they possibly could. At some points, I felt like an unpaid pastor. But then I suffered a breakdown and was hospitalized several times. I will NEVER forget that first Sunday back to church. Not ONE person either looked at me or talked to me! I never went back. These were the people who raised me in the faith. And yet, they could not deal with someone who had been suicidal and depressed. It was extremely painful but I understood the stigma that still attaches to mental illness and depression.

My message to the Church is this: What would Jesus do? First of all, he would heal me. But he would NEVER judge me or anyone else suffering from depression. Blame the disease not the patient. Jesus loves us all unconditionally. We ALL have our weaknesses and we are ALL sinners. But mental illness, in and of itself, is not a sin. It is a disease. It is no more sinful than having cancer. If and when the Church and broader society GETS that fact, the stigma may begin to disappear and the mentally ill may be included in society in a fuller and broader way. I hope and pray not too many more of us are ostracized before that happens.